Something that Gilbert and his family have worked hard to control is how Nick is remembered. They’ve taken several steps to ensure that Nick’s memory will live on. They opened Gilly’s Clubhouse in downtown Detroit. Gilly was a nickname given to Nick by his friends. The upscale sports bar was Nick’s vision and a project that he was developing before he died. Gilbert’s other children, Nick’s siblings, started The Gilly Project, a community based non-profit dedicated to Nick’s honor. And Gilbert made curing NF a key pillar of the Gilbert Family Foundation, the Detroit-based philanthropy Gilbert and Jennifer launched in 2015. Those efforts — punctuated by an annual benefit event in Detroit —have raised millions towards finding a cure.
“We raised $12 million in one night. We keep breaking records. We’re contributing about $50 million a year to research.”
CNBC
