Welcome to ASFN Fan Forums! We're glad to have you here. Please feel free to browse the forum. We'd like to invite you to join our community; doing so will enable you to view additional forums and post with our other members.
Registered Members don't see these ads. Register now it's free!
Just checking to see if anyone here has celiac disease besides me.
Celiac disease is a genetic, immunologically mediated small bowel enteropathy that causes malabsorption. The immune inflammatory response to gluten frequently causes damage to many other tissues of the body. The condition is frequently underdiagnosed because of its protean presentations. New prevalence data indicate that symptomatic and latent celiac disease is present in one of 300 people of European descent. Age of onset ranges from infancy to old age. Symptomatic presentations include general ill-health, as well as dermatologic, hematologic, musculoskeletal, mucosal, dental, psychologic and neurologic diseases. Celiac disease has a 95 percent genetic predisposition and, thus, it is frequently associated with autoimmune conditions such as diabetes mellitus type 1 and thyroid disease. Untreated patients have an increased incidence of osteoporosis and intestinal lymphoma. Excellent diagnostic screening tests are now available, including those that detect antigliadin and antiendomysial antibodies. Therapy with a gluten-free diet is effective, resulting in complete resolution of symptoms and secondary complications in almost all patients. Local and national celiac-sprue associations facilitate care of patients with celiac disease and support dietary compliance.
I just read something in the paper about that ... i think there area going to be free screenings/clinics/workshops or something to that extent throughout the city over the next month
if anyone is interested I'm sure it can be found on the republic's site
Celiac disease is a genetic, immunologically mediated small bowel enteropathy that causes malabsorption. The immune inflammatory response to gluten frequently causes damage to many other tissues of the body. The condition is frequently underdiagnosed because of its protean presentations. New prevalence data indicate that symptomatic and latent celiac disease is present in one of 300 people of European descent. Age of onset ranges from infancy to old age. Symptomatic presentations include general ill-health, as well as dermatologic, hematologic, musculoskeletal, mucosal, dental, psychologic and neurologic diseases. Celiac disease has a 95 percent genetic predisposition and, thus, it is frequently associated with autoimmune conditions such as diabetes mellitus type 1 and thyroid disease. Untreated patients have an increased incidence of osteoporosis and intestinal lymphoma. Excellent diagnostic screening tests are now available, including those that detect antigliadin and antiendomysial antibodies. Therapy with a gluten-free diet is effective, resulting in complete resolution of symptoms and secondary complications in almost all patients. Local and national celiac-sprue associations facilitate care of patients with celiac disease and support dietary compliance.
I am not trying to be insensitive or anything, but can someone explain what it is in layman's terms.
__________________
I.D. badges are long overdue. Security in this office park is a joke. Last year, I came to work with my spud gun in a duffel bag. I sat at my desk all day, with a rifle that shoots potatoes at 60 pounds per square inch. Can you imagine if I was deranged? - Dwight K. Schrute
Celiac disease is a genetic, immunologically mediated small bowel enteropathy that causes malabsorption. The immune inflammatory response to gluten frequently causes damage to many other tissues of the body. The condition is frequently underdiagnosed because of its protean presentations. New prevalence data indicate that symptomatic and latent celiac disease is present in one of 300 people of European descent. Age of onset ranges from infancy to old age. Symptomatic presentations include general ill-health, as well as dermatologic, hematologic, musculoskeletal, mucosal, dental, psychologic and neurologic diseases. Celiac disease has a 95 percent genetic predisposition and, thus, it is frequently associated with autoimmune conditions such as diabetes mellitus type 1 and thyroid disease. Untreated patients have an increased incidence of osteoporosis and intestinal lymphoma. Excellent diagnostic screening tests are now available, including those that detect antigliadin and antiendomysial antibodies. Therapy with a gluten-free diet is effective, resulting in complete resolution of symptoms and secondary complications in almost all patients. Local and national celiac-sprue associations facilitate care of patients with celiac disease and support dietary compliance.
The newest research studies show it's about 1 in 130. This quote you found has the basics OK, but it seems dated in terminology. Especially new studies that show most celiacs are unsymtomatic, thus the underdiagnosis along with the misconception it is a "rare" disease, until they unfortunatly develop something horrible like cancer of the bowels.
__________________ KOC Rules!
Yuma's Dad RIP 03/22/07
I still have a gut feeling Shaq will be better next season (2008/2009) after our docs have a full off season to work their magic on the Big Saguaro!
NORTHEAST VALLEY - An increasing number of people who have chronic digestion problems are discovering that they suffer from celiac disease, or gluten intolerance. It is a genetic disorder that one in 133 Americans has.
The disease is aggravated by eating glutens (wheat, rye and barley products), which harm the intestines.
The Scottsdale-based Sprouts Farmers Market stores are holding teach-ins and food samplings to introduce those with the disease to the gluten-free life.
Chefs, support groups, speakers and free samples will be featured at all-day events throughout the Valley in August and September.
The events will be held Aug. 24 at the Scottsdale and Chandler stores; Aug. 25 in Glendale; Aug. 26 in Higley; and Aug. 27 at 19th Avenue in Phoenix.
For store locations and the September dates go to www.sprouts.com.
I know it deals with the bowels, but is there anything we should be looking for?
__________________
I.D. badges are long overdue. Security in this office park is a joke. Last year, I came to work with my spud gun in a duffel bag. I sat at my desk all day, with a rifle that shoots potatoes at 60 pounds per square inch. Can you imagine if I was deranged? - Dwight K. Schrute
There is clear evidence of a family tendency toward celiac disease. 5-10% of the first-level relatives (parents, children, and siblings) of diagnosed celiacs may develop celiac disease. The disease affects both sexes, and it can begin at any age, from infancy (as soon as cereal grains are introduced) to later life (even though the individual has consumed cereal grains all along). The onset of the disease seems to require two components: genetic predisposition (two specific genetic markers, called HLA subfactors, are present in well over 90% of all celiacs in America), and some kind of trigger. The trigger may be environmental (as in overexposure to wheat), situational (perhaps severe emotional stress), physical (such as a pregnancy, an operation), or pathological (a viral infection).
Once thought to be a childhood disease that would be outgrown, recent evidence indicates that it is not uncommon for the symptoms of celiac disease to disappear during late childhood or adolescence, giving the appearance of a cure. Unfortunately, damage still occurs during these years of apparent health, and later in life these celiacs may find they have suffered considerable damage to the small intestine, and have for years deprived themselves of important nutrients.
Also:
Quote:
Celiac disease, also known as gluten intolerance, is a genetic disorder that affects 1 in 133 Americans. Symptoms of celiac disease can range from the classic features, such as diarrhea, weight loss, and malnutrition, to latent symptoms such as isolated nutrient deficiencies but no gastrointestinal symptoms. The disease mostly affects people of European (especially Northern European) descent, but recent studies show that it also affects Hispanic, Black and Asian populations as well. Those affected suffer damage to the villi (shortening and villous flattening) in the lamina propria and crypt regions of their intestines when they eat specific food-grain antigens (toxic amino acid sequences) that are found in wheat, rye, and barley.
also found in Malt, too. Also:
Quote:
Because of the broad range of symptoms celiac disease presents, it can be difficult to diagnose. The symptoms can range from "mild weakness, bone pain, and aphthous stomatitis to chronic diarrhea, abdominal bloating, and progressive weight loss." If a person with the disorder continues to eat gluten, studies have shown that he or she will increase their chances of gastrointestinal cancer by a factor of 40 to 100 times that of the normal population. Further, "gastrointestinal carcinoma or lymphoma develops in up to 15 percent of patients with untreated or refractory celiac disease." It is therefore imperative that the disease is quickly and properly diagnosed so it can be treated as soon as possible.
Based on the figure mentioned above we can extrapolate the total number of people in the United States with celiac disease: 2.18 million (based on the total population: 290,356,0285). It is very important that doctors understand just how many people have this disease so that routine testing for it is done to bring the diagnosis rate in line with the disease's epidemiology. Testing is fairly simple and involves screening the patient's blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis.
The only acceptable treatment for celiac disease is strict adherence to a 100% gluten-free diet for life. An adherence to a gluten-free diet can prevent almost all complications caused by the disease. A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods.
Hope this helps answer what it is. It is insidious in that most people are poising themselves without knowing. Or because of the faulty training in US medical schools, doctors are told it is rare and don't diagnose patients correctly even when overt symtoms are shown.
__________________ KOC Rules!
Yuma's Dad RIP 03/22/07
I still have a gut feeling Shaq will be better next season (2008/2009) after our docs have a full off season to work their magic on the Big Saguaro!
My sister-in-law has it. She is not really that strict with what she eats. She can eat food containing gluten at times and not have symptoms but if she eats it alot of gluten containing food then she has problems. Her symptoms are mostly stomach aches, nasuea and other bowel related issues
I don't think she is educated enough as far as the long term ramifications as most people probably are not. Thanks for the info Yuma.
We found out our son had it...This will sound wierd, but we were so relieved!
He had been saying he wasn't feeling good and would go through stages literally curled up in a ball on the floor at school in pain - then the pain would go away. We took him to several doctors before we found one that nailed the root cause.
Now he's doing great! If anyone has found they or their kids have it and feel like discussing it more in detail, let me know and I'll do what I can to help.
free screenings/clinics/workshops throughout the city over the next month...
Here's the info:
The lowdown on... coping with celiac
Celiac disease is a digestive disorder that affects about one out of every 133 Americans, according to the National Foundation for Celiac Awareness. People with the disease have an auto-immune reaction in the small intestine to gluten, a protein found in wheat, barley, and rye. They suffer gastrointestinal problems and they can't absorb nutrients properly.
Many are misdiagnosed with other ailments. Symptoms include abdominal bloating and pain, seizures, numbness in the legs and missed menstrual periods. Celiac disease is diagnosed through a blood test and biopsy.
The only treatment is to banish gluten from the diet, which can be tricky, but is achievable.
Gluten-free help
Sprouts Farmers Market will hold a gluten-free event at its Valley locations, with giveaways, food samples and talks by local chefs and experts, plus representatives from local celiac support groups.
All events run from 11 am to 3 pm, except where noted:
Aug. 25th: 57th Avenue and Bell, Glendale (602)896-0300
Aug. 26th: Southern Avenue and Higley, Mesa (480)218-6491
Aug. 27th: 19th Avenue and Northern, Phoenix (602)864-6130
Sept. 11th: 51st Avenue and Peoria, Glendale (store opening Aug. 31st)
Sept. 21st: 3 to 6 pm, Brown and Gilbert, Mesa (480)668-0800
Sept. 22nd: Cactus and Tatum Blvd., Phoenix (602)971-4177
Sept. 23rd: 28th Street and Indian School, Phoenix (602)553-3131
Sept. 24th: 83rd Avenue and Thunderbird, Peoria (623)334-1111
__________________
"If Chuck is Solo, Larkin is his Fett!" - Morgan
We found out our son had it...This will sound wierd, but we were so relieved!
He had been saying he wasn't feeling good and would go through stages literally curled up in a ball on the floor at school in pain - then the pain would go away. We took him to several doctors before we found one that nailed the root cause.
Now he's doing great! If anyone has found they or their kids have it and feel like discussing it more in detail, let me know and I'll do what I can to help.
Hey DutchmanAZ:
The absolutly best forum for celiac disease on the net is in Delphi forums. We have food lists maintained by members of safe items your son can eat from normal food labels. Also, great onfo found by members from all across the internet. You can register for free.
search on "celiac" in the search box in the left top area of the main page.
You should select the site maintained or sponsored by bfcoughlin.
You can download the food lists for free, once you are a member of delphiforums, in word or text format. That alone is worth being a member of delphiforums. The advice and info on the site is gravy after the that. The food lists are down in the middle of the start page which is http://forums.delphiforums.com/celiac/start
I highly recommend it!
__________________ KOC Rules!
Yuma's Dad RIP 03/22/07
I still have a gut feeling Shaq will be better next season (2008/2009) after our docs have a full off season to work their magic on the Big Saguaro!
Moon Lander Champion!
All Hell is breakin loose!!!!!
Tetris Champion!
Linear Mode
